Evaluation of the knowledge about next-generation therapies among the Spanish-speaking population

  • Estibaliz Urarte Patient Engagement in Research Area, Institut de Recerca Sant Joan de Déu, España
  • Joana Claverol Patient Engagement in Research Area, Institut de Recerca Sant Joan de Déu, España
  • Begonya Nafria Patient Engagement in Research Area, Institut de Recerca Sant Joan de Déu, España
Keywords: cell therapy, education, gene therapy, knowledge, next-generation therapies

Abstract

Introduction: When it comes to innovative treatments, there is an imperative need to clarify misconceptions and strengthen basic notions in order to enhance patient participation in research. Objectives: To analyse the level of knowledge of the general population regarding genetic and cell therapies. Methodology: The study was performed through an online survey. Results: The survey was completed by 518 people and several gaps were detected, such as target diseases for these treatments, side effects or concepts like ‘vectors’ or ‘mutations’. The respondents highlighted as most appropriate formats conferences given by a professional in the field, videos or infographics. The Internet was the preferred source of information, particularly specialized science media and websites of official institutions. Conclusion: We propose an educational campaign comprising of a series of talks in a blended format, led by experts with both a science and communication background. We also recommend the co-design of a collection of materials disseminated through institutional websites, social networks or science specialized media.

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Published
2022-11-30
How to Cite
Urarte, E., Claverol, J., & Nafria, B. (2022). Evaluation of the knowledge about next-generation therapies among the Spanish-speaking population. Revista Española De Comunicación En Salud , 13(2), 129-142. https://doi.org/10.20318/recs.2022.6801
Section
Originals